Patient Video - What self-management and lifestyle practices do you follow for your FCS?

Charles describes some of the ways he manages the physical and emotional aspects of living with Familial Chylomicronemia Syndrome (FCS).  He felt lonely and emotionally-detached when he was first diagnosed. By changing his mindset and staying connected with other people with FCS, he felt encouraged to move forward and do better. Online resources and the FCS patient communities on social media have helped him overcome some of the isolating aspects of his condition. Charles also talks about adopting a disciplined approach to diet and physical activity to stay as healthy as possible. Lastly, he recommends speaking with your doctor about participating in clinical trials.

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Patient Video - When did you find out you had FCS? How was it diagnosed?
1. Patient Video - When did you find out you had FCS? How was it diagnosed?
Patient Video - Do any of your family members have FCS?
2. Patient Video - Do any of your family members have FCS?
Patient Video - How often do you see your doctor about FCS? What do you discuss?
3. Patient Video - How often do you see your doctor about FCS? What do you discuss?
Patient Video - What foods and diets do you avoid for your FCS?
4. Patient Video - What foods and diets do you avoid for your FCS?
Patient Video - What self-management and lifestyle practices do you follow for FCS?
5. Patient Video - What self-management and lifestyle practices do you follow for FCS?
Patient Video - Do you exercise as part of your routine for managing FCS?
6. Patient Video - Do you exercise as part of your routine for managing FCS?
Patient Video - What are the biggest challenges you face living with FCS?
7. Patient Video - What are the biggest challenges you face living with FCS?
Patient Video - What resources do you find useful for managing your FCS?
8. Patient Video - What resources do you find useful for managing your FCS?

This educational activity has been developed by: The National Pancreas Foundation and Mechanisms in Medicine Inc.

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This website is part of the Animated Patient™ series that provides highly visual formats of learning for patients to improve their understanding, make informed decisions, and partner with their health care professionals for optimal outcomes.