Patient Video - What foods and diets do you avoid for your FCS? What advice do you have for others?
Charles emphasizes that the number one thing to avoid if you have FCS is fat (no more than 10 grams of fat per day). He acknowledges that this can be very restrictive, but it is not impossible. Charles follows a plant-based diet with as little fat as possible and suggests using MCT oil for mixing and cooking vegetables. With the help of a dietitian, Charles has found a diet plan that allows him to eat a healthy, well-balanced diet with very minimal amounts of fat.
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Patient Videos
1.
When did you find out you had FCS? How was it diagnosed?
2.
Do any of your family members have FCS?
3.
How often do you see your doctor about FCS? What do you discuss?
4.
What foods and diets do you avoid for your FCS?
5.
What self-management and lifestyle practices do you follow for FCS?
6.
Do you exercise as part of your routine for managing FCS?
7.
What are the biggest challenges you face living with FCS?
8.
What resources do you find useful for managing your FCS?
