Patient Video - What are the biggest challenges you face living with FCS?
Nicole shares her challenges of living with FCS, such as initially not knowing what was affecting her, difficulty finding doctors who could help, and dealing with the associated emotional burdens. She advocates the need for greater awareness about FCS in the healthcare disciplines while also recommending that treatment protocols should be adjusted for patients with pancreatitis. With her FCS currently well managed, Nicole is focusing on enjoying life, advocating for others, and working to spread greater awareness about FCS.
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Patient Videos
1.
When did you find out you had FCS? How was it diagnosed?
2.
Do any of your family members have FCS?
3.
How often do you see your doctor about FCS? What do you discuss?
4.
What foods and diets do you avoid for your FCS?
5.
What self-management and lifestyle practices do you follow for FCS?
6.
Do you exercise as part of your routine for managing FCS?
7.
What are the biggest challenges you face living with FCS?
8.
What resources do you find useful for managing your FCS?
9.
What words of wisdom do you have for other persons with FCS?
