Patient Video - What words of wisdom do you have for other persons with FCS?
Nicole shares that it is important to recognize that there is hope and that FCS is manageable. She emphasizes the importance of educating yourself, advocating for yourself, and listening to yourself – all of which will help you through your experience with FCS. There may be roadblocks, so try your best to move past them until you find the support you need.
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Patient Videos
1.
When did you find out you had FCS? How was it diagnosed?
2.
Do any of your family members have FCS?
3.
How often do you see your doctor about FCS? What do you discuss?
4.
What foods and diets do you avoid for your FCS?
5.
What self-management and lifestyle practices do you follow for FCS?
6.
Do you exercise as part of your routine for managing FCS?
7.
What are the biggest challenges you face living with FCS?
8.
What resources do you find useful for managing your FCS?
9.
What words of wisdom do you have for other persons with FCS?
